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Aging with Disability
Aging with Disability – summary is adapted and distributed for use with permission. The material was excerpted and adapted from an application submitted by: Rancho Los Amigos National Rehabilitation Center in collaboration with The University of Southern California and The University of California, Irvine, to NIDRR for a RRTC on Aging with a Disability in August 1998
Aging with a Disability Another Advocacy Priority 1991 , 2 pages, One of the first consumer-focused articles broadened the aging with disability issue beyond polio and spinal cord injury. Details personal experience, sometimes humorously, of aging with cerebral palsy and the frustration with the medical community’s lack of knowledge. Advocates for more research, more involvement of people with disabilities, and more advocacy to address elements of aging with a disability.
Aging with a Disability: Conclusions after a Visit to the USA Bergen, March 1998, By Janicke Kilian and Terje Binder, A short version of a Norwegian report
Aging with a Disability: Educating Myself, in Generations, Journal of The American Society on Aging, Vol. XVI, No. 1, Winter 1992, 3 pages, pdf
Details personal experiences about the lack of information related to aging with a disability. Lists specific questions in key areas (research, prevention, nutrition and advocacy) which need answers.
“C:\Users\June\Dropbox\0 _ Products\_ Disability 03.2.18\Publications products produced\AWD\Aging with a Disability Educating Myself 1992.pdf”
Aging with Disability Good News and Bad News 2001,pdf
“C:\Users\June\Dropbox\0 _ Products\_ Disability 03.2.18\Publications products produced\AWD\Aging with Disability Good News and Bad News 01-4.pdf”
Aging with Cerebral Palsy (not dated) redo ////
“C:\Users\June\Dropbox\0 _ Products\_ Disability 03.2.18\Publications products produced\AWD\agewith cerebral palsy.wpd”
Aging While Living with Disability 1990
“C:\Users\June\Dropbox\0 _ Products\_ Disability 03.2.18\Publications products produced\AWD\Aging While Living with Disability 1990 UCPJK.doc”
Midlife Cripdom: Getting Fewer Miles per Gallon? THE DISABILITY RAG, Volume 16, No. 4, July/August 1995, 16 pages .pdf
Terms, aging and cripdom, new realities and new concerns and a lot of new questions, advocating for more than health reform, a few horror stories, crip symbol hangups, misguided pride versus freedom, a few tips for weighing whether to use the gear, recommended readings, online resources, new disability resource. Reprint
“C:\Users\June\Dropbox\0 _ Products\_ Disability 03.2.18\Publications products produced\AWD\Mid-life Cripdom Getting Fewer Miles per Gallon 07.1995.pdf
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June Isaacson Kailes
Disability Policy Consultant
June Isaacson Kailes (www.jik.com) owns a disability policy consulting practice and is a pioneer, leader, and innovator in health care, emergency management, aging with disability, stakeholder engagement, and hospitality. She is respected as a writer, trainer, researcher, policy analyst, subject matter expert, and advocate. The breadth and depth of her experience in disability, accessibility, and functional needs issues are widely recognized.
June concentrates on replacing the ambiguous aspects of disability etiquette, sensitivity, awareness, and legal compliance with maximum impact practices and measurable skill sets. June works with clients to build critical disability competencies and capabilities. She translates the laws and regulations into clear, actionable, detailed, and sustainable building blocks and tools that close service gaps, prevent civil rights violations, and remove barriers, inequities, and disparities. June uses the “how, who, what, where, when, and why, to get physical, programmatic, communication, and equipment access right!
June has the unique ability to blend and bridge two worlds: disability user experiences with health and emergency services experiences. Her clients include local, state, federal, and international governments, disability-led, disability-focused, community-based organizations, emergency management and health care consultants, health facilities (plans, clinics, medical centers, systems), legal services, colleges and universities, accrediting organizations, research and training centers, and grant makers. June is the recipient of many honors and awards, has delivered hundreds of keynote addresses, workshops, and seminars, and has over 200 publications.
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Disability Competencies
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- Accessible Meetings, Events, and Conferences — Questions
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- Effectively Including People with Disabilities in Policy and Advisory Groups
- Language
- Medical, Social, and Independent Living Disability Models
- Physical Access Videos
- Archives
- Drills and Exercises
- Etiquette to Actionable Practice
- FAST (Functional Assessment Service Teams)
- Health Plan Emergency Practices
- Individual Preparedness
- Registries
- Reports
- Services
Disability Archives /// coming soon
Disability archives — Advocacy, goal setting, mentors, oppression, pride, valuing time note2june: ‘INK NE ED ED
, 2 pages, One of the first consumer-focused articles broadened the aging with disability issue beyond polio and spinal cord injury. Details personal experience, sometimes humorously, of aging with cerebral palsy and the frustration with the medical community’s lack of knowledge. Advocates for more research, more involvement of people with disabilities and more advocacy to address elements of aging with a disability.